The Life Of Nolan: Lexi and Nolan enjoy the PARK!

Wednesday, September 8, 2010

Lexi and Nolan enjoy the PARK!

1 comments:

Nan P. said...: That looks like a fun day. My grandson Cathal loves the park too. And I love bringing him.; September 9, 2010 at 2:06 PM

Nolan Alex Chisaakay-Soucy... Born June 25th 2009, Changed our lives forever.

Nolan was born with Trisomy 18, me and his daddy found out about his diagnoses at 22 weeks gestational.It was a very sad moment hearing the words "you need to think about termination because he won't survive to term,and if he does he will die shortly after birth" we knew that was'nt a choice for our precious boy.We gave him the right to live as long as his little body could be here for, we wanted to meet him properly and give him the best life a little boy could ask for...we did just that, and still are!

Your probably wondering What Is Trisomy 18?

Trisomy 18, also called edwards syndrome,is a chromosomal condition associated with severe intellectual disability and abnormalities in many parts of the body.Babies with trisomy18 often have a low birth weight, a small head,small jaw and mouth,clenched hands with overlapping fingers,heart deffects and other abnormalities of other organs.Due to the presence of several life-threatning medical problems, 90-95% of babies die in utero and those 5-10% born alive wont live with this condition to see their first birthday. Trisomy 18 is instead of having the 2 copies in the 18th pair there is 3 making this too much information for the cells in his body, this is what causes all the disabilities.

Nolan is living with a large whole his heart, but you wouldnt even know because he's full of love.We love him dearly.