The Life Of Nolan: We MADE IT!!

Friday, June 25, 2010

We MADE IT!!

Happy 1st Birthday to our Miracle Nolan! he has beaten the odds! just one of the many in his amazing journey, what a great start to his new year! Im so proud to be his mommy.... its 1 am friday june 25th, his arrival time was 2:29am but i need some sleep for a long great weekend ahead of me! so much excitement,celebrating and making memories, Nolan has shown us all in different ways how not to take things for granted, he has taught me patience and so much more.Having him with us means the world we love him dearly! Happy birthday sweet boy Your a BIG BOY NOW!!!

3 comments:

Cathy said...: Happy Birthday to your sweet Nolan. I received a google alert today so that is how I found your blog. I will be checking back. My little girl has full Trisomy 18 and a very large VSD and many other issue and has never had surgery for her heart yet. I will be back to read more as to what and how Nolan is affected or not. But for now Happy Birthday and enjoy your sweet boy!; June 25, 2010 at 6:03 AM
Bess Raulerson said...: Happy Birthday to Nolan! Did you know you can receive a free bear in honor of his birthday from www.HopeForTrisomy.org? Just click Payton's Birthday Bears and submit the order!

Bess Raulerson
Director
Hope For Trisomy 13 and 18; June 25, 2010 at 10:12 AM
Unknown said...: Happy birthday, Nolan! You are such a cute little trooper!; June 26, 2010 at 2:20 PM

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Nolan Alex Chisaakay-Soucy... Born June 25th 2009, Changed our lives forever.

Nolan was born with Trisomy 18, me and his daddy found out about his diagnoses at 22 weeks gestational.It was a very sad moment hearing the words "you need to think about termination because he won't survive to term,and if he does he will die shortly after birth" we knew that was'nt a choice for our precious boy.We gave him the right to live as long as his little body could be here for, we wanted to meet him properly and give him the best life a little boy could ask for...we did just that, and still are!

Your probably wondering What Is Trisomy 18?

Trisomy 18, also called edwards syndrome,is a chromosomal condition associated with severe intellectual disability and abnormalities in many parts of the body.Babies with trisomy18 often have a low birth weight, a small head,small jaw and mouth,clenched hands with overlapping fingers,heart deffects and other abnormalities of other organs.Due to the presence of several life-threatning medical problems, 90-95% of babies die in utero and those 5-10% born alive wont live with this condition to see their first birthday. Trisomy 18 is instead of having the 2 copies in the 18th pair there is 3 making this too much information for the cells in his body, this is what causes all the disabilities.

Nolan is living with a large whole his heart, but you wouldnt even know because he's full of love.We love him dearly.