Consultation With The Surgeon

Today was a very nervous day for us...as we had our appointment with the surgeon to discuss a G-Tube placement for Nolan, We think this would be good for him to have and too get rid of the Ng tube that he hates so much.The appointment went well, i had my binder full of papers and in that was my questions for Dr.Lees.I had it open on the patient bed ready to ask away! He came in and introduced himself quickly, then opened up Nolans file and read about his condition.He then asked what his current weight was i said 11 lbs 11.5oz.He then looked over at my paper full of questions he sat up on the table next to me and Nolan, he began to explain everything my questions were about,He's totally awesome!


We didnt really have to ask anything at all, The procedure is fairly quick and minor ...I had a concern about Nolan dying on the operating table, he reassured me that he has NEVER had a child die on his table, even the ones with more severe cases than Nolan, he also told us that they will be treating him like any other child, they will not be underlining his condition to not use any intervention if something should happen during or after surgery, they will do anything in their power to make sure he will be fine.He will also be on constant monitoring for his STATS , we will have to stay in the hospital for 48-72 hours after the operation, it was also discussed that they may put him on a ventilator and keep him PICU for 24 hours just to make sure.We feel very at ease knowing that our nolan will be in great care while he undergoes this surgery we are looking into the date for the surgery after his 1st birthday.They will be calling us in about 1 month with a set date, we are still alittle nervous as any parent is when its surgery no matter how big or small it may be, i just dont want to see him in any pain, but we look forward to not haveing to change his NG tube anymore.Please have Nolan in your thoughts and prayers when this big day comes, thank you.