The Life Of Nolan: 5 MONTHS OLD!

Wednesday, November 25, 2009

5 MONTHS OLD!

We are thrilled to announce Nolans 5th month birthday! Happy birthday baby boy!
Today he weighs 9lbs 2oz, the nurse is very happy with his progress and how he looks.She got lots of cuddles with Nolan and had a hard time leaving she just loves him so much and calls him "little peanut" because of how small he was when he was born.We will be celebrating tonight when his daddy gets home from work! Way To go Nolan!!!!!

Nolan Alex Chisaakay-Soucy... Born June 25th 2009, Changed our lives forever.

Nolan was born with Trisomy 18, me and his daddy found out about his diagnoses at 22 weeks gestational.It was a very sad moment hearing the words "you need to think about termination because he won't survive to term,and if he does he will die shortly after birth" we knew that was'nt a choice for our precious boy.We gave him the right to live as long as his little body could be here for, we wanted to meet him properly and give him the best life a little boy could ask for...we did just that, and still are!

Your probably wondering What Is Trisomy 18?

Trisomy 18, also called edwards syndrome,is a chromosomal condition associated with severe intellectual disability and abnormalities in many parts of the body.Babies with trisomy18 often have a low birth weight, a small head,small jaw and mouth,clenched hands with overlapping fingers,heart deffects and other abnormalities of other organs.Due to the presence of several life-threatning medical problems, 90-95% of babies die in utero and those 5-10% born alive wont live with this condition to see their first birthday. Trisomy 18 is instead of having the 2 copies in the 18th pair there is 3 making this too much information for the cells in his body, this is what causes all the disabilities.

Nolan is living with a large whole his heart, but you wouldnt even know because he's full of love.We love him dearly.