The Life Of Nolan: Lexi's 2 and Nolans 3 Months Today!

Friday, September 25, 2009

Lexi's 2 and Nolans 3 Months Today!

Today is a very happy day our daughter was born into this world 2 years ago we will never forget the joy of her entrance, and finally getting to meet her.Nolan is 3 whole months today! we have his immunizations soon and will update when we get home. Tomorrow will be the big party for both of them we and our family are very excited for the special occasion!

Nolan Alex Chisaakay-Soucy... Born June 25th 2009, Changed our lives forever.

Nolan was born with Trisomy 18, me and his daddy found out about his diagnoses at 22 weeks gestational.It was a very sad moment hearing the words "you need to think about termination because he won't survive to term,and if he does he will die shortly after birth" we knew that was'nt a choice for our precious boy.We gave him the right to live as long as his little body could be here for, we wanted to meet him properly and give him the best life a little boy could ask for...we did just that, and still are!

Your probably wondering What Is Trisomy 18?

Trisomy 18, also called edwards syndrome,is a chromosomal condition associated with severe intellectual disability and abnormalities in many parts of the body.Babies with trisomy18 often have a low birth weight, a small head,small jaw and mouth,clenched hands with overlapping fingers,heart deffects and other abnormalities of other organs.Due to the presence of several life-threatning medical problems, 90-95% of babies die in utero and those 5-10% born alive wont live with this condition to see their first birthday. Trisomy 18 is instead of having the 2 copies in the 18th pair there is 3 making this too much information for the cells in his body, this is what causes all the disabilities.

Nolan is living with a large whole his heart, but you wouldnt even know because he's full of love.We love him dearly.