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Saturday, January 22, 2011

Nolan Alex Chisaakay Soucy June 25 2009-January 21 2011 our angel

Nolan....as i sit here at the computer crying as i type this sad update im thinking about nolans sweet face and how he had changed us from the moment we found out about him.At 6:40pm january 21 2011 nolan went to heaven, we held him with every last breath he took it was the hardest thing we have ever had to go through, loosing our baby boy we so muchly wanted to live.Nolan struggled to fight off RSV,Pneamonia and Bronchilitis he was on antibiotics in the stollery for 4 days through IV we thought he would pull through and get better,he had ups and downs those 4 days.It was hard im not going to get into details but i will when im ready share his last week here with us.His last moments were precious we cried,i told him we loved him and everyone loved him, we kissed him we held him tight we told him it was alright,i said he changed me forever and that it was okay if he had to go, i think we told him we loved him a million times within 2 minutes.It was fast to fast i wasnt ready but he was.We will never forget the times we shared with our miracle how he defied every odd! and showed doctors who is boss! i love him but i miss so much, it hurts with every breath i take.Nolan will have a celebration of life this Friday january 28th at 3:30pm in edmonton, at park memorial.Please celebrate our sweet boys life with us.for those who know me you have my number call me for more details, thank you everyone for support i will still continue to post about Nolan.As its not goodbye...its see you later ...

17 comments:

Anonymous said...

Im so sorry for your loss. Ive been following your blog from the very beginning.

praying for strength and comfort for you and you're family at this difficult time.

Sandy Daron said...

I am soo very sorry for the loss of your precious Nolan.

Please accept my heartfelt condolences. I will pray for your family.

♥♥ Love in Christ!! ♥♥
C.O.L.E.'s Foundation (Caring Openly, Loving Eternally)
Email: sandy@colesfoundation.com
Sandy Daron

terry wingate said...

We are so sorry for your loss. I can't imagine the pain you are going through......Fly high Angel xoxox
I know Nolan will watch over our Jerrod and other Trisomy 18 babies!!

Spike, Terry & Jerrod Wingate

Anonymous said...

Amanda, your blog has been remarkable, and very inspirational for me: my T18 princess turns 1 in two days time... Your little fella is at peace forever now, and you can stand proud at having given him such a beautiful life, full of real love and quality time.. Best mum ever. I will think of Nolan at the time of the memorial, and send you all my positive thoughts. xxx

Melissa Smurdon said...

Amanda -
I'm so, so sorry for the loss of Nolan. I am so very glad for his life. Your post is remarkable - I hope it will bring you peace in the coming days to know he was ready to go. I know too well it will not diminish the pain but that there will be comfort alongside it from Nolan himself. His journey has been remarkable and you've been such wonderful parents!

Nolan - you are loved so much and will be missed every minute. Watch over your sweet family who squeezed a lifetime of love into your time here.

Let me know if I can be of support in any way.
Love to you,
Melissa
(Noah's mommy)

Nan P. said...
This comment has been removed by the author.
Nan P. said...

I am so sorry Amanda. I am thinking of you all at this difficult time, and though in very different part of the world, I will join you with a special thought on Friday.

Taryn said...

Dear Amanda and family
I am so very very sorry for your loss. I am crying as I write this... my heart just bleeds for you all.
It makes every moment I have with Mikayla just that much more precious.
Know that around the world there are people praying for you as you go through these sad times.
And while it may not diminish the pain; and the sadness here on earth... know that Nolan is in Heaven, free and watching over his very precious family.
Sending you all much love
Taryn
Mother of Mikayla

Patty said...

Amanda I am so sorry for your loss. Nolan could not have had better parents or more love. Thank you for sharing him with us. Fly high Nolan!

Anonymous said...

Amanda, I'm so sorry! Nolan has had an incredible life with a wonderful family that celebrated and advocated for him! Sending you hugs and prayers during this difficult time!!
Cindy
(Jordan's Mom)

Jill Smith said...

Dear Amanda,
I am so, so sorry. I have been following Nolan's story for so long. What a joy it has been to behold such a miracle!

My heart breaks for you and Nathan and Lexi. I pray that you find peace and comfort in these difficult times.

Love,
Jill
(Lily's mom)

Anonymous said...

Dear family.

You did a great job with Nolan and the real
importan thing its that you have all this
memories with Nolan for all your life. You love him
with all your heart and you will have allways Nolan
waiting for you in heaven.

We look your blog each day beacouse you give us a lot
of strengh.

Amanda you can´t imagine how much you gave us with your blog you.

Timoteo (Full trisomy 18 - 3 days old) & Txema & Lola from Spain.

Bianca said...

Dearest Amanda,

We are saddened to hear about the passing of Nolan. No one else can truly feel the sorrow that you bear. Although Nolan's time with you was brief, he only felt love in his life. Nolan has given you many beautiful and lasting memories. May you all find comfort and peace knowing we are here to remember your precious son, Nolan, with you, today and always.

With Deepest Sympathy,

Bianca DeLone and all the staff and volunteers at Trisomy 18 Foundation.

Anonymous said...

Dear Amanda and family,

Last sunday evening I read the heart breaking news that Nolan past away... I know that you feel peace for your brave little boy but at the samen time the emptiness is unbearable. Knowing that Nolan is at a beautifull gives you strength but missing your child hurts so bad...
When I found out that Nolan had to let go I cried and could stop. It almost felt Like I lost my little girl al over again. We lost our Jazz* last may 16 days afther she was born. We found out about her full T18 after here birth... The pictures of Nolan that showed his grow was a little bit her grow, his smile was here smile... Nolan showed me the things that Jazz* didn't got to show us becaus here time was come... We loved the short-film of him having the giggles, it's priceless. He is sutch a special boy, we will never forget him...
I want to thank you for sharing your journey and I want to let you know that al over the world there are people feeling your pain, thinking about you and your familie... but most of all Nolan touched our hearts...

Lots of love
Claudy Takken (Holland)
claudysarac@hotmail.com

CelesteElizabeth said...

Hi Amanda,
You don't know me, nor do I know you. But I have been following your blog for months now... When we found out our little princess might have trisomy 18, I turned to the story of those like you who were going through the same situation as a form of comfort, I guess. I must say you were my biggest inspiration, you are young and strong!! And almost the same age as I am... but I loved checking out your updates and everytime they brought tears of joy to my eyes!! Little Nolan was such a fighter and an inspiration!! I only hope, wish and pray that if my little one has trisomy 18, she can be as strong and as brave as Nolan. I'm so very sorry for your loss, and my prayers are with you. Little Nolan is now in heaven and will always be watching over you. You are truly an amazing woman, and an even more amazing mother!!

Anonymous said...

Dear Amanda and Family,

I am so sorry for your loss. I have been following your blog since this past August when our son Noah was born with trisomy 18. I found comfort in reading about Nolan and it gave me hope that I would be able to spend as much time with my Noah, as you did with Nolan. Your strength and courage is an inspiration to me. Thank you so much for sharing Nolan through your blog, he will truly be missed.
My condolences to you and your family.

Aya W.
Tokyo Japan

brandigirl said...

My sister is 20 and pregnant with a baby boy with trisomy 18. She has been so desperate for someone to talk to in their twenties. Maybe, if you can she would love it.