December and January are a very emotional time of year for us, December because its a time when families come together and when you are missing someone in the family its a struggle to feel truely happy .January, well because it will be nolans 2nd angel anniversary, a very hard time to get through.I am so happy and thankful for Lexi and Kinsley even through the tough times. The lights nolan would spend hours watching at christmas time through the new year, it was his favourite thing :) now kinsley is doing the same and its bitter sweet. im wishing nolan was right there with his sisters admiring the lights.We have the endless memories of nolan but it just never will be the same or enough, he will always be missed with everything we do, we try to include him in most things and talk to the girls about their brother daily i know its healing for lexi and even me to just simply say his name and remember that he did live instead remembering his death.I pray that our girls will feel the same way as they grow older. for now we live for the moment and cherish time we have.
Nolan Alex Chisaakay-Soucy... Born June 25th 2009, Changed our lives forever.
Nolan was born with Trisomy 18, me and his daddy found out about his diagnoses at 22 weeks gestational.It was a very sad moment hearing the words"you need to think about termination because he won't survive to term,and if he does he will die shortly after birth"we knew that was'nt a choice for our precious boy.We gave him the right to live as long as his little body could be here for, we wanted to meet him properly and give him the best life a little boy could ask for...we did just that, and still are!
Your probably wondering What Is Trisomy 18?
Trisomy 18, also called edwards syndrome,is a chromosomal condition associated with severe intellectual disability and abnormalities in many parts of the body.Babies with trisomy18 often have a low birth weight, a small head,small jaw and mouth,clenched hands with overlapping fingers,heart deffects and other abnormalities of other organs.Due to the presence of several life-threatning medical problems, 90-95% of babies die in utero and those 5-10% born alive wont live with this condition to see their first birthday. Trisomy 18 is instead of having the 2 copies in the 18th pair there is 3 making this too much information for the cells in his body, this is what causes all the disabilities.
Nolan is living with a large whole his heart, but you wouldnt even know because he's full of love.We love him dearly.
A song created from a friend (pause nolans site music and select this link) amazing
I am 23 years old and have three beautiful children two girls and one boy.My daughters name is lexi and ,my sons name is nolan he has full trisomy 18 and is a pure miracle who lived to be 19 months he passed away january 21 2011 to complications of RSV.Im engaged to be married to a wonderful man named Nathan of nearly 10 years we have finally set the date to become mr and mrs August 23 2014 My family is everything to me! Nolan Alex Chisaaky-Soucy went to heaven January 21 2011,he lives on in our hearts forever.Love you little guy...We recently added a new edition to the family a little girl named kinsley! born November 11th!