Edits from a friend...

10 MONTHS!!!

Today we got to celebrate Nolans 10th month with us, it was a great day! I made a winnie the pooh cake and instead of the red shirt winnie has i made it blue ...it turned out fabulous! We are so happy we got to spend yet another month with our miracle.Nolan fought hard to be with us in the beginning, im amazed each and everyday at how precious his life is and am glad to have him in my arms.To hold, to love, to kiss, to cuddle ,to touch his soft hair, to play with his feet and hands and most of all just stare in awe at my family...we are complete.

me and my happy feet(Nolan)



Smiles

Moments after his Birth

Here is a photo of nolan i never got to share because i didnt have it on a disk its in a frame in our home..seconds after we hear his sweet little cry and get to hold him.

Fun day at the park.

Today was great! Nathan and I decided to take the kids to Rundle Park due to the beautiful weather! It was a blast we spent 3 hours walking,playing and lexi threw rocks into the water with her daddy, Nolan enjoyed the sun and just simply being outdoors!He absolutely loooooved it! Both of them loved looking at the geese, nolan studied them very well...next weekend we plan to have a picknick at horlack park with friends and family CAN't WAIT!

Nolan

Different Feelings about DNR

Lately I've had this strong feeling that if something did ever happen to Nolan where he did need CPR I think in the moment of panic I would be crying and wanting them to do everything they could to help him.I dont think I could handle watching him just "Go" without doing anything, I would always wonder what if they did help him and he lived longer, and if the help didn't work then atleast i tried everything i could to keep him.Now that he's made it this far my outlooks on different things and situations are changing.We still want pallative care in keeping him comfortable, examples are... medication to help his heart we still dont want to go down the road of heart surgery, but if it did ever come up that we needed him to have the surgery if the heart was failing then we are open to discussing it with his doctor, BUT only if it was an ABSOLUTE last resource for him.As for now we havent needed to make any rash decisions with his life or care we hope this wont change.Nolan is doing great and still defying all the odds and fighting for his own life without any interventions he's nothing short of a pure Miracle.

The big move/ Bad bug

Well all i can say is this past week had been BBBUUSSY! we finally moved into our beautiful apartment, but both kids were sick with colds and settling down was hard with 2 litle ones that were needing all of my energy to take of them especially little nolie.He had it the worst...it started with a stuffy nose then a bad cough, a few days later he got the runs with vomitting, it was very scary for us because we though he may have had an infection(turns out it wasnt) we visited the pediatrition 2 times in the week and each time they reassured us it was just a bad bug that could last up to a week.For nolan he was extremely miserable all day and night, the crying never stopped, only when he was sleeping did he stop.It was very exhausting for both me and nolan i got little to no sleep because i was so worried, but he started turning around yesterday to happier boy, and last night he slpt 9 hours! im now feeling more at ease that he is much better!